Current funding models discourage investment into smaller patient populations, preventing promising science from advancing to clinical treatment options
Privately held intellectual property creates an artificial scarcity in available technology, raising costs and restricting the impact of innovations
Small and distributed patient populations contribute to unique challenges in defining endpoints, recruiting patients, and measuring therapeutic efficacy
The rapid growth and technical evolution of the research and development ecosystem contributed to a dilution of skilled work force required for advanced therapies
An estimated 95% of rare diseases have no treatment options, in part, because the pharma industry is poorly adapted to serving the smaller patient populations with lesser financial incentives.
Overcoming fundamental barriers, at scale, gives hope to millions of rare disease patients around the world
To accelerate the advancement of genetic medicine in the area of rare diseases
Design and build digital platforms for decentralized collaboration in the development of genetic medicine for rare diseases.
Our platforms will leverage network effects to overcome the most prevalent barriers to bringing genetic medicines out of the laboratory and into clinical trials.
DeSci Applied Research is in an early phase of our journey toward accelerating the field of rare disease research. We want to work with others who share our passion for innovative science and are committed to putting patients before profits. We hope you connect with us to join this exciting journey of unlocking technical innovations to change the lives of patients around the world.